February 21, 2019 10:00am - February 24, 2019 11:59pm
Run for hope. Run for a cure. Run for Evie.
Where flowers bloom, so does hope.
~Lady Bird Johnson
Five years ago, I started training for my first Disney Princess Half Marathon. I logged mile after mile, building my endurance, my confidence, and my determination to finish 13.1 in honor of my daughter Evie. Every step moved me further from despair and closer to hope. Hope in a cure for Rett Syndrome. Today we are closer to a cure than I ever dreamed possible five years ago.
Breakthroughs in research are moving us closer to possible treatments and a cure for Rett Syndrome. One of the most exciting development is in the world of gene therapy. Within the next year, there are plans to begin clinical trials for gene therapy as a treatment for Rett Syndrome! That is what our participation in the Disney Princess Half Marathon helps raise more for...research for a cure. You can help make a cure happen with your charitible donation to team For the Love of Evie.