Run for hope. Run for a cure. Run for Evie.

Where flowers bloom, so does hope. ~Lady Bird Johnson

For the Love of Evie

Five years ago, I started training for my first Disney Princess Half Marathon. I logged mile after mile, building my endurance, my confidence, and my determination to finish 13.1 in honor of my daughter Evie. Every step moved me further from despair and closer to hope. Hope in a cure for Rett Syndrome. Today we are closer to a cure than I ever dreamed possible five years ago.

Breakthroughs in research are moving us closer to possible treatments and a cure for Rett Syndrome. One of the most exciting development is in the world of gene therapy. Within the next year, there are plans to begin clinical trials for gene therapy as a treatment for Rett Syndrome! That is what our participation in the Disney Princess Half Marathon helps raise more for...research for a cure. You can help make a cure happen with your charitible donation to team For the Love of Evie.

Our Team

$2,271.20

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$3,000.00

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Recent Activity

Our Supporters

  • Center for Rare Neurological Disease February 2019 $500.00
  • Dealer Direct LLC January 2019 $500.00
  • Good Samaritan Shipping Ministries December 2018 $170.00
  • Janet Constantine December 2018 $25.00
  • Melynda Waldron November 2018
  • Center for Rare Neurological Disease February 2019 $500.00
  • Dealer Direct LLC January 2019 $500.00
  • Good Samaritan Shipping Ministries December 2018 $170.00
  • Maria Dees You are awesome Alyssa! Sorry we will be unable to make your dinner I'm sure it will be fabulous! November 2018 $100.00
  • Glynda Perry 2 Popup dinners for the 6:00 seating October 2018 $60.00