Friends & Family-

It's the time of year again where I begin my journey to join my Rett family and Girl Power 2 Cure in their efforts to raise funds for research for Rett Syndrome. This will be my 11th (!) year running in the Disney Princess Half Marathon for our sweet Caroline and my best friend and warrior mom, Jeanna. 

In case you don't know, Rett Syndrome is a debilitating neurological disorder that predominantly affects females (but can also affect boys) and is the leading genetic cause of severe neurological impairment in girls. Kids are born “normal,” but begin to lose acquired skills between 1 and 3 years old. Most lose their ability to speak, walk or use their hands, and depend on their families for every part of their day. Complications also include seizures, scoliosis, and the potential for sudden death.

Despite their physical disabilities, girls and boys with Rett Syndrome function at a similar cognitive level to their peers. Amidst the mass confusion in their central nervous systems, they are smart, strong, and waiting bravely for us to unlock the door to a cure and their recovery. 

Today, there is no cure. But Rett Syndrome is potentially CURABLE! Experimental treatments in mice and primates have shown many promising results including a reversal of Rett symptoms. 

Please consider joining me in my efforts to find a cure for Rett syndrome by making a donation today -- and follow my journey towards race weekend beginning February 28th, 2026!