Dravet has devastated our family. When you find yourself entering the parenthood journey you're filled with excitement and wonder of all the possibilities and opportunities for your little one. You wonder which subjects or hobbies they'll enjoy. You wonder what their personality will be like. You wonder what their passions will be. 

With Dravet, you instead wonder if you will outlive your child and if that's the case, who will care for them? 

With Dravet, you wonder if they will be happy with their quality of life.

With Dravet, you wonder if walking, talking, and living independently will be in their future. 

With Dravet, sleeping feels risky because what if they need rescue during the night? 

Our little Rowan endured a thirty minute seizure at just five months old. After that he had thirty minute seizures every week to every other week for months.

We have so much to worry about and so much to be grateful for. We have all of the love, drive, and fight for this battle. 

Please join the fight for the cure!

Love and Light,

Tavares Family