Go Team Mia!

Our Story

Our Dravet warrior Mia- is 16 years old.  She started having seizures at 3 months of age.  Throughout her life, she has had thousands of seizures, countless hospital stays and struggles with medication side effects.  Through it all- she has perservered and is a shining light in this world!  She is resilient and full of love!!  (a common trait of all Dravet Warriors). 

There is no cure for Dravet Syndrome.  Our family will always work hard to raise awareness and funding for Dravet.  We are hopeful for a CURE and will never give up!! 

 

Thank you for your love and support for our family! 

Love, 

Justin, Erin, Mia and Hannah 

My Supporters

  • Tracy Battaglino June 2024 $50.00
  • Erin Frost June 2024 $103.00
  • Erin Frost June 2024 $103.00
  • Tracy Battaglino June 2024 $50.00