Please help us in finding a cure for those with Dravet Syndrome. Every donation goes towards funding that helps our loved ones in many different ways. We set a goal for $500.00 for the month of June as this month is Dravet Syndrome Awareness Month. Every donation made is a step towards finding a care. Thank you for your support!
Our Story
B's first seizure occurred at the age of 4 months and since then, it's been a whirlwind of seizures, medicine changes and trials, hospitalizations, doctors visits all up the east coast and many hardships and emotions as we navigate this incurable disease. At the end of the day, our son always gets right back up fighting, showing us the true definition of what it looks like to be a warrior. Our goal is to bring awareness to Dravet and hopefully continue to raise funds for the Dravet Foundation in order to one day find a cure not only for B but for all our Dravet families. Every donation is one step closer to finding this cure.