UPDATES:
On 6/22, the hairdresser who helped my wife start this fundraiser came to our home and dyed all our hair purple during our dying hair party! What an amazing time! Thanks to everyone for believing in our cause to cure Dravet Syndrome for Cora and all the warriors!
We reached $1750 so we let both the girls, Maggie and Cora, get some purple streaks!!
We reached $1500, my mom Cindy Funn will be going purple!
We reached $1,000, my brother-in-law, Brandon, will go purple!
We reached our $750 goal so my wife, Jen will be returning to purple.
We reached our initial goal of $500 from so many generous supporters so I'll be going purple!
OUR STORY
My name is Chris, and I am the father to two beautiful daughters named Maggie and Cora. I am also the husband to my wife Jen, who is a Dravet Syndrome Foundation Parent Ambassador and one of the original creators of the Dye it for Dravet fundraiser.
Cora is our youngest daughter (pictured in my profile) who has Dravet Syndrome. She was born in 2020 during the pandemic and experienced her first seizure randomly at 5 months. She experienced 3 more seizures before being tested and diagnosed with Dravet Syndrome at 9 months young. In her short 3 years on this planet, Cora has endured 23 seizures and has been hospitalized 14 times, including 4 Pediatric Intensive Care Unit stays on life support. Cora has endured multiple rounds of testing and bloodwork as well as participated in medical studies in efforts to learn more about this disorder to find a cure. She has participated in hours of therapy for her speech, vision, development, occupational and physical needs. Cora’s diet has also been medically managed by Ketogenic and Modified Atkins protocols. She takes at least 9 medications a day EVERY DAY in efforts to minimize her seizure activity.
Cora is the bravest and most resilient person I know. She has endured so much in these 3 years and is still a loving and adventurous toddler. We are blessed to be her parents and support her in this life. I am dying my hair purple in efforts raise awareness and money for the Dravet Syndrome Foundation. We need to find a CURE for this dreadful disease. My wish is a future where Cora can be herself and live her life without the fear of an unknown medical situation robbing her joy.
