Our Team Fundraising Page

Ben has been SEIZURE FREE since December 5, 2018! Friends and family have witnessed, in real life or through social media updates, some tough outcomes for Ben over the past two years since his first seizure and Doose Syndrome diagnosis--seizures that were unpredictable, hard to treat, and tough to watch, drop seizures that led to significant injuries, and medication and seizure side effects that affected his behavior and cognitive abilities. We finally landed on the right treatment combo (Depakote, Onfi, Felbatol) that stopped his seizures for now and we are thrilled to have reached this milestone! 

In November 2018 Ben was having hundreds of seizures a day. Seizure types included myoclonic/jerk seizures, absence/staring seizures, and atonic/drop seizures. During this time, he powerfully landed on his chin from an atonic/drop seizure that resulted in injuries: a laceration needing 7 stitches, knocking out a tooth and fracturing a molar, and fracturing his jaw in two locations. A week after these injuries, as he reached the therapeatic dose of Felbatol, we witnessed Ben's last seizure! 

We are thankful for everyone who supports, prays for, and loves Ben. Ben's epilepsy doesn't play fair but we continue to fight and remain hopeful that he will be seizure free for many more days, months, and years ahead!

Our family uses some of the services provided by the Epilepsy Foundation of Minnesota. Ben has attended day camp the past two summers. He loves the activities and we love that he's connecting with other children who have epilepsy. He would like to attend the overnight camp, Camp Oz at Camp St. Croix in Hudson, WI, next summer! Chris and I attend the Epilepsy & Seizures Wellness Expo every November. We listen to keynote speakers, attend breakout sessions, and chat with vendors. We learn more about seizure treatment history, new treatment developments, and inspriring treatment stories. We hear about the heartbreak of SUDEP (Sudden Unexplained Death in EPilepsy) and the weary role of being a caregiver to someone with epilepsy. We learn about financial planning for when a dependent has cognitive impairment from epilepsy. And we learn about the social stigma that continues to exist for those with epilepsy. This expo increases our awareness as we try our best to be the parents Ben needs us to be. We can't thank the Epilepsy Foundation of MN enough for the services they provide to families and individuals who are affected by epilepsy!

Our Team

  • BI Benjamin Irwin $143.10
  • EI Ezekiel Irwin
  • SP Stephen Passero
  • Julie Irwin Julie Irwin Team Captain $0.00
  • CI Christopher Irwin
  • GR Gavin Riebe
  • AI Anna Irwin
  • DI Dave Irwin
  • KI Kyle Irwin
  • JI Jim Irwin
  • KI Kathie Irwin
  • HR Harlan Radman
  • NR Nancy Radman
  • CR Cheryl Riebe
  • JR James Riebe
  • GR Grant Riebe
  • TI Tim Irwin
  • MI Malachi Irwin
  • JI Jedidiah Irwin

$1,913.10

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$1,500.00

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Our Supporters

  • Anonymous September 2019 $100.00
  • Arnold Radman September 2019 $50.00
  • Harlan Radman September 2019 $100.00
  • Charlie and Leah Radman We love you and are so proud of how strong you are, Ben! September 2019 $100.00
  • Anonymous September 2019 $100.00
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  • Combine for a Cure March 2019 $770.00
  • Anonymous September 2019 $100.00
  • Harlan Radman September 2019 $100.00
  • Charlie and Leah Radman We love you and are so proud of how strong you are, Ben! September 2019 $100.00
  • Anonymous September 2019 $100.00
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