Help Us Bring This Gene Therapy Across the Finish Line

Help Us Create a Healthy Future for Children with FOXG1 Syndrome

Welcome to my fundraising page for the FOXG1 Research Foundation! I've created this team to raise ongoing support for groundbreaking research that's changing the future for children with FOXG1 syndrome- a rare and severe neurological disorder. 

This cause is close to my heart. I'm fundraising in honor of Amara, and all of the incredible children around the world living with FOXG1 Syndrome. 

The FOXG1 Research Foundation is a parent-led nonprofit leading a historic effort to bring the first treatment-a gene therapy- to children with FOXG1 syndrome all around the world.

How you can help:

  • Donate: Every gift fuels research and brings us closer to life-changing treatments.
  • Share: Spread the word by sharing this page with your friends, family, and networks.
  • Join the Team: Create your own page and fundraise alongside us!

Thank you so much for being a part of this mission.

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$125,509.68

achieved

$200,000.00

goal

of your goal reached

"Yes, They Can!" The FOXG1 Gene Therapy Campaign

Learn More

My Supporters

  • Jennifer Burg 3 weeks ago $100.00
  • Dana Gordon 3 weeks ago $100.00
  • Jonathan Goldenstein 4 weeks ago $1,000.00
  • Nilgun Yankaya Akram Happy birthday dear Amara! You are such a loved and lucky girl -- I hope you feel this love so much on your birthday. Last month $100.00
  • Lauren Valentine Happy birthday, sweet girl!!  Last month $100.00
  • Ami Badani December 2025 $70,000.00
  • David Fisch December 2025 $25,000.00
  • Evans-Graglia Family Fund February 2026 $10,000.00
  • Charles Simonyi November 2025 $5,000.00
  • Dawn Beauparlant Last month $4,974.68

SPONSORS

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