Welcome to my fundraising page for the FOXG1 Research Foundation! I'm helping raise funds to support the groundbreaking research that's changing the future for children like me with FOXG1 syndrome- a rare and severe neurological disorder.
I love music and spending time at the ocean with my mom. I am hopeful for a treatment that will increase my physical abilities and decrease my seizures. I dream that I might even be able to ride a wave on my own someday!
The FOXG1 Research Foundation is a parent-led nonprofit leading a historic effort to bring the first treatment-a gene therapy- to children with FOXG1 syndrome all around the world.
How you can help:
Donate: Every gift brings us closer to life-changing treatments.
Share: Spread the word by sharing this page with your networks.
Join the Team: Create your own page and fundraise alongside us!
Thank you so much for being a part of this mission.