On February 18, 2025, we received the diagnosis that my then 10-month-old granddaughter Elouise has FOXG1 Syndrome. If you are like us, we had never hear of it before. It is a rare genetic disease that affects 1200 people worldwide. FOXG1 severely affects the brain's development. There is research for a cure happening right now. Clinical trials are set to start in early 2026. We are asking for your support through prayer, donations, or spreading awareness of this disorder. We are hopeful for a cure. Elouise is such a gift to us. Her smile truly melts your heart. We know that God has a plan for her life. We live in faith for today and hope for tomorrow.
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Thank you so much for being a part of this mission.