To celebrate Reuben turning ONE, we’re raising donations for FOXG1 research. It might not benefit Reuben directly, but it brings hope for children like him and for future families facing this rare condition. Join Team Reuben and help us turn his first birthday into a gift of hope!
The FOXG1 Research Foundation is a parent-led nonprofit driving a historic effort to bring the first-ever treatment for FOXG1 syndrome - a potentially life-changing gene therapy - to children around the world.
Here’s how you can join the race:
Donate: Every dollar helps!
Share: Spread the word by sharing this page!
Thank you for being part of this incredible movementnto create a healthier life for Reuben and all his FOXG1 friends worldwide.
Reuben's First EEG
Reuben was 5 months when he's diagnosed with infantile spasm which led us to do epilepsy panel testing that confirmed his FOXG1 syndrome
We got Reuben back! He finally lost his swollen 'moon face' from taking steroid medication that caused water retention in his body. He's much more active and happy these days.