Join me on this Journey

My Journey

Snorkeling one day in 2012, I came up from a hard swim feeling breathless and with pain in my lungs.
Biopsies of my lungs showed I had familial IPF, a rare form of Pulmonary Fibrosis. IPF causes thickening and scarring of lung tissue. This hinders the flow of oxygen into my bloodstream, making even simple activities increasingly difficult or impossible.

My disease has steadily progressed. I now have had a successful double lung  transplant September 24th 2020. I am feeling great 7 weeks post surgery. I am  also a participant in a Familial study at National Jewish Medical Research in Colorado.

I am also committed to supporting those who suffer from IPF and who need information, encouragement and hope. I co-lead my local chapter of the Garden State Pulmonary Fibrosis Support Group which helps IPF sufferers and their caregivers.

I ask you to join me in my quest to raise awareness, find a cure, and offer support to those with IPF.

 

About the Event:

Join us virtually for the 12th Annual Garden State 5K!

Tune in and virtually support the Pulmonary Fibrosis Foundation and the Garden State Pulmonary Fibrosis Support Group, Inc. at the 12th Annual Garden State 5k during September thru December 2020

Registered participants can receive a commemorative t-shirt! 

When: September  through December

Where: Virtually

Virtually walk with us to spread awareness and raise funds for the PF community. You can participate anytime and anywhere by: 

- Walking in or around your house

- Using exercise machines

- Participating in an online workout class

- Participating in a fitness challenge on apps such as Fitbit or Strava

Show us how you're participating! We welcome videos, Instagram posts, and Facebook posts. Send your photos and videos to Jackie at jwilliams@pulmonaryfibrosis.org

You can donate directly to "The Garden State Pulmonary Fibrosis Support Group, Inc." (GSPFSG):and mail to:

Garden State Pulmonary Fibrosis Support Group, Inc.

25 Cedar Lake West

Denville, NJ 07834-1705

 

Or you can Click donate now for your donation to go to the PFF on my team  page.

For questions about the Pulmonary Fibrosis Foundation, call Jackie at 312-224-4667 or jwilliams@pulmonaryfibrosis.org.

 

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