Hemophilia B is a hereditary bleeding disorder caused by a lack of blood clotting factor IX. Without enough factor IX, the blood cannot clot properly to control bleeding...
Our brave 9 year old boy, Saul, has this life long bleeding disorder and endures weekly infusions to help replace the clotting factor that's missing.
One day during Saul's infusion he asked me "Ninang (Godmother) ...is there another way?"