The 100-Step Challenge is an Impactful Way to Raise Awareness and Funds for Kennedy’s Disease

Hope Starts With a Single Step


As you take your next 100 steps, think about what it would be like to slowly lose the ability to walk those steps. Imagine knowing that you could pass this disease on to your children and grandchildren. This is why we are passionate about finding a cure.

Why 100 Steps?

For many men living with Kennedy's Disease, walking just 100 steps without assistance is a significant challenge. The 100-Step Challenge represents their daily struggles, strength and perseverance. 

Help us find a cure.

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How It Works

Taking part in the 100-Step Challenge is easy! Follow these three simple steps to participate:

STEP 1

Register and Create Your Fundraising Page

Sign up, set your fundraising goal, and personalize your page with your story and photos.

STEP 2

Get Moving & Start Your Challenge Activity

Commit to completing 100 steps (or equivalent activity) each day, or create your own unique 100-Step Challenge.

STEP 3

Share Your Story & Raise Funds

Share your story to help others understand the impact of Kennedy’s Disease, the importance of the Challenge and how they can support your efforts.

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Featured Participant Stories

Meet some of the inspiring individuals participating in this year's 100-Step Challenge.

John's Journey with Kennedy's Disease

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Last year, John launched his own 100-Step Challenge and raised an incredible $35,000. This year, we're stepping up together and building on his success to bring us closer to a cure for Kennedy’s Disease.

READ JOHN'S STORY

Carol: Taking Steps in Memory of her Father

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On my wedding day, my dad walked me down the aisle - a moment I wasn’t sure would be possible. My dad lived with Kennedy's Disease and I’m passionate about finding a cure.

READ CAROL'S STORY

Share Your Journey & Raise Funds

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Share your progress on social media, email friends and family, and collect donations for your efforts.

Your Impact

Your participation in the 100-Step Challenge makes a real difference in the lives of those affected by Kennedy's Disease.

Research Funding

Your donations help fund critical research into treatments and eventually a cure for Kennedy's Disease.

Support Services

The Kennedy's Disease Association provides resources, education, and community for patients and families affected by KD.

Awareness

Your participation helps raise visibility for this rare disease and advocacy for those affected.