My name is Nick Bryan, I have Spinal Bulbar Muscular Atrophy, known as Kennedy's Disease. On top of having this rare genetic disease I also have hypokalemia, which has progressed the Kennedy's Disease and have struggled for several years now to keep my potassium levels at a safe level. I have not publicly shared my story until now. I spent 5 years trying to get a diagnosis going to many world renowned hospitals while several of them kept telling me that I had ALS/ Lou Gehrig's disease. It was finally University Hospitals of Cleveland that solved the mystery. My awesome personal primary care physician had mentioned Kennedy's Disease 2 years prior in somewhat jest due to its rareness and my "rare" personality. The Kennedy's Disease Association has been a great place to stay informed and up to date on the latest research studies, events, and group studies.

I’m thrilled to be participating in Kennedy's Disease Association, a fundraiser supporting Kennedy's Disease Association! I’m passionate about this cause and need your help! Every donation—big or small—helps me reach my fundraising goal and directly impacts this important cause.

Here's how you can help:

• Donate: Contribute whatever you can. No amount is too small!
• Spread the Word: Share my fundraising page with your friends, family, and social networks. Let’s spread awareness so we can raise more!

Thank you for standing by me in this effort. Your support means the world to me!