If you are diagnosed you are one step ahead of a lot of people with RSD. Many go undiagnosed. Like most patients and caregivers you still have many questions about doctors, medications, treatments and many more.  My daughter is 34 and has had RSD since age 10.  We have been through these questions.  This organizations helps people with those questions.  This cruel disease has a profound affect on the lives of patients and caregivers.  I appreciate your support.