The resilience of a young child is inspiring! At the Lighthouse of Pinellas we work with blind and visually impaired individuals (children through adults) whose resilience inspires us to do something more. To help them thrive.

Maverick is a 2-year-old child who was diagnosed with Joubert Syndrome, a rare genetic condition characterized by abnormal brain development, possibly affects other organs of the body and vision loss. He was also diagnosed with Leber’s Congenital Amaurosis (LCA), a retinal eye disorder. Children with LCA may also have crossed eyes, rapid involuntary eye movements, farsightedness, and light sensitivity. His vision is severely limited but exact understanding of his vision loss cannot be determined due to his age.

Maverick began receiving Early Intervention services at the Lighthouse of Pinellas in August 2022 at the age of 14-months. Before receiving services, Maverick was at the developmental age of approximately a 10-month-old. He had very little verbal expressive language, unable to stand for more than 30 seconds or walk. Instructors focused on helping Maverick acquire skills to learn about the world around him by using his other senses. They also work with him to improve orientation and mobility skills so that he can safely navigate his environment.

In the 15 months that Maverick has been receiving weekly individualized vision services, he has made tremendous gains. Through weekly training, Maverick can now communicate his needs and wants verbally and through sign language. He crawls or walks to explore his environment and educational toys. Maverick is now willing to explore and touch a variety of textures. He enjoys textured picture books and braille in books. He is learning to use a pediatric belt cane to navigate his surroundings safely. Eventually he will be able to walk confidently and independently using the pediatric belt cane or white cane.