New England Hemophilia Association's 2026 Unite Walk   ○   The Mighty Miazgas

Carolyn Miazga

September 26, 2026 10:00am - 2:00pm

My Personal Fundraising Page

Why Your Donation Matters

Family and friends - I’m thrilled to be participating in the 2026 Unite for Bleeding Disorders Walk, a fundraiser to support the bleeding disorders community! As you know, my sons, Aiden (13) and Andrew (10) both have severe Hemophilia A.  It has been an incredible journey from diagnosis to absolutely thriving!  

The thing is, we weren't always thriving.  The early days were HARD.  They were filled with grief, fear, and despair.  Many days I didn't know how I was going to get through life raising children with a severe chronic illness.  And then I asked for help.  I leaned into an organization that's reason for being was people like us.  

The New England Hemophilia Association (NEHA) is an organization that serves the New England bleeding disorders community.  All money raised stays within our community and funds crucial advocacy, education, research, and support services. As a community member and a Board member, I’m passionate about this cause as it has directly impacted the health and well-being of my family.  But, I can't show my gratitude for NEHA alone.  This is why I walk - to raise funds for the organization that has helped my family to thrive.  Every donation— big or small — helps me reach my fundraising goal and directly impacts this important cause. 

Here's what YOU can do:

  • Donate: Contribute whatever you can. No amount is too small! (Really, I promise, even $1 helps!).  You can donate directly to me or show some love for one (or both) of the boys through our team page.
  • Spread the Word: Please share!  By sharing my fundraising page with your friends, family, and social networks, we can spread awareness so we can raise more!  You never know who may be impacted or who is willing to donate to this amazing cause!

Thank you for your support in this journey.  It truly means the world to me.  I would also be grateful if you followed our story:  As a matter of factor. I'd love for you to learn more and help raise awareness for those living with a bleeding disorder.

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My Supporters

  • Erin McCauley 3 days ago $15.48
  • Samantha Carlson, LMSW THANK YOU, NEHA, for your incredible commitment to funding research to advance care for all! Keep up the wicked strong work! 4 days ago $25.80
  • Carolyn Miazga Last month $25.80
  • Samantha Carlson, LMSW THANK YOU, NEHA, for your incredible commitment to funding research to advance care for all! Keep up the wicked strong work! 4 days ago $25.80
  • Carolyn Miazga Last month $25.80
  • Erin McCauley 3 days ago $15.48

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