We can't believe Elizabeth is celebrating her 22nd birthday on September 9th!  In honor of her birthday, we are raising money for the Phelan-McDermid Syndrome Foundation. As many of you know, Elizabeth was born missing a part of her 22nd chromosome: 22q13 deletion. It is know as Phelan-McDermid Syndrome, and is quite rare. As of December 2020, there were about 2500 cases worldwide. It has a wide range of symptoms and manifestations, but Elizabeth has severe developmental delay, low muscle tone, intellectual impairment, no functional language, and seizures, She cannot dress or feed herself or use the toilet and requires full-time care. The mission of the Phelan-McDermid Syndrome Foundation is to improve the quality of life of those with Phelan-McDermid Syndrome by providing family support, funding research and raising awareness. We hope to do our part with this birthday fundraiser to raise awareness amongst our family and friends!