This foundation has been instrumental in keeping us informed about so many aspects involved with raising a kid like Nolan. Much of the information we have received has been critical in helping create a nurturing environment for him. Please consider giving.
During the course of his early development, Nolan was not hitting his milestones. After some encouragement from a family member, we sought out a neurologist to examine and test Nolan. Although we knew he was delayed, we were shocked to find out that he has a deletion of the 22nd chromosome occurring de novo. The resulting condition, known as Phelan-McDermid Syndrome, has created new challenges for our family.
Through the last two years Nolan has shown us the meaning of the word 'resilience.' His schedule is packed with numerous one-on-one therapies and he spends most of his week at an ABA therapy school. He is a sweet kid who enjoys Sesame Street, Daniel Tiger, and Just Dance among other activities.