Let's Support Benny to "Get Movin'" (Like He Needs Any Help!)
Benny is so excited to "GET MOVIN" and raise funds and hope for the families affected by Phelan-McDermid syndrome! He was diagnosed with PMS last December after initially being diagnosed with autism, global development delay, speech disorder, and intellectual disabilities. Our family is SO GRATEFUL to have found out what makes the real Benny tick, as well as getting connect to the Phelan-McDermid Syndrome Foundation. Please help us raise money to fund research and provide critical support services for families like ours who suffer from ongoing trauma, anxiety, depression, speech disorders (non-verbal) as well as the range of physical challenges experienced by individuals with PMS.
Starting May 22nd and going through June 12th our familiy will commit to intentional walks and outings using an adaptive stroller to get Benny movin' and I'd be honored if you would help me by making a donation in honor of Benny Bitenc. The Phelan-McDermid Syndrome Foundation (PMSF) is an incredibly valuable resource for our family and hundreds of other families. Every donation will help us reach our goal.
The mission of Phelan-McDermid Syndrome Foundation is to improve the quality of life of people affected by Phelan-McDermid syndrome worldwide by accelerating research, providing family support, and raising awareness.
