ROCK4RV 2022

Welcome to the 2022 annual fundraising drive in memory of Robert (Bob) Vitanza, who succumbed to Creutzfeldt-Jakob Disease (CJD) in 2008. Throughout the 14-year history of this event, and thanks to the help of many, ROCK4RV has become the #1 "family fundraiser" (as conducted by a family of a deceased loved one) in the 28-year history of the CJD Foundation! You all ROCK!

Please continue to support by making a tax deductible donation. All proceeds will be donated directly to the CJD Foundation Inc (www.cjdfoundation.org), a 501(c)(3) organization and, specifically, for research grants to find a cure for this rare and fatal brain disease.

Please also feel free to spread the word and thank you for your continued support and generosity!

Creutzfeldt-Jakob Disease is a rare, rapidly progessive neurodegenerative disease, one of several prion diseases caused by prion proteins that misfold in the brain. There is no treatment or cure and the disease is invariably fatal.

The mission of the Creutzfeldt-Jakob Disease Foundation is to support families affected by prion disease, raise awareness, and support medical education and research.

We carry out this mission through: 

• Family support including a 7-day HelpLine, referrals, support groups, and teleconference speaker series
• Education and information for families, caregivers, medical professionals, and funeral professionals
• Advocacy with political representatives and public policy makers
• Annual Family Conference that brings together affected families and prion disease experts
• Family Workshops held around the country
• Collaboration with scientists, clinicians, medical centers, health authorities, professional organizations, and international patient associations
• Communication of current research and Foundation activities via newsletter, social media, emails, and family teleconferences
• Research grant program, with international awardees selected by our Scientific Advisory Committee