Welcome to the 2023 annual fundraising drive in memory of Robert (Bob) Vitanza, who succumbed to Creutzfeldt-Jakob Disease (CJD) in 2008. Throughout the 15-year history of this event, and thanks to the help of many, ROCK4RV has become the #1 "family fundraiser" (as conducted by a family of a deceased loved one) in the 29-year history of the CJD Foundation! You all ROCK!
Please continue to support by making a tax deductible donation. All proceeds will be donated directly to the CJD Foundation Inc (www.cjdfoundation.org), a 501(c)(3) organization and, specifically, for research grants to find a cure for this rare and fatal brain disease.
Please also feel free to spread the word and thank you for your continued support and generosity!
About The CJD Foundation
Creutzfeldt-Jakob Disease is a rare, rapidly progessive neurodegenerative disease, one of several prion diseases caused by prion proteins that misfold in the brain. There is no treatment or cure and the disease is invariably fatal.
The mission of the Creutzfeldt-Jakob Disease Foundation is to support families affected by prion disease, raise awareness, and support medical education and research.
We carry out this mission through:
Family support including a 7-day HelpLine, referrals, support groups, and teleconference speaker series
Education and information for families, caregivers, medical professionals, and funeral professionals
Advocacy with political representatives and public policy makers
Annual Family Conference that brings together affected families and prion disease experts
Family Workshops held around the country
Collaboration with scientists, clinicians, medical centers, health authorities, professional organizations, and international patient associations
Communication of current research and Foundation activities via newsletter, social media, emails, and family teleconferences
Research grant program, with international awardees selected by our Scientific Advisory Committee