Fundraising Page: Jimmy & Robyn McCrossin (Team McCrossin)

Sole2Soul for MPN

Jimmy & Robyn McCrossin (Team McCrossin)

We Are Raising Funds for MPN Research

This summer, we are trekking through the Rocky Mountains to raise awareness and funds for MPN research.

My Story

This is personal to me...

On June 10, 2021, I received the devastating news that I had developed a type of MPN known as Myelofibrosis….and, that there was no cure! I have spent my entire adult life preaching and practicing health and fitness personally, and in my career as an Athletic Trainer/Director of Sports Medicine for a professional hockey team. This could not be happening to me!  I had not felt right for some time but until that fateful day, there was no explanation given for the pain, horrific cramps, fatigue, abnormal bloodwork, etc. The mental anguish is too much to detail here. Needless to say, I was not in a good place.  I felt hopeless.

As we became more educated about MPNs and myelofibrosis, we discovered that there were some promising clinical trials available. We found a specialist at the Cleveland Clinic, Dr. Aaron Gerds, who changed everything for me. On the first visit, Dr. Gerds, spent well over an hour with us. He explained where I was in the disease and how this Clinical Trial could help me. I had HOPE! I began the Clinical Trial in February, 2022. At that time, my pain and symptoms were frequently 10/10. Now, my pain is 1-2/10 and my blood work has improved. I am feeling stronger and almost like ‘myself’ again. Anyone who has walked this or a similar walk understands what I mean by that. 

This was/is only possible due to organizations such as the MPN Research Foundation and generous donations from the private sector. Many of you know that every year (pre covid) my wife and I have fundraised for various important charities. This time it’s personal.   Any donation you can make to the MPN Research Foundation will give me, and others like me, the realistic HOPE that a cure for our MPN is right around the corner.  Until then, medical progress continues to provide more ways to manage our symptoms than ever before. Prior to participating in my Clinical Trial, the THOUGHT of a trek like this would have been laughable.  Six months later, it is doable!  Robyn, our family and I thank you from the bottom of our hearts for your support!   --- Jimmy

$9,231.51

achieved

$9,000.00

goal

of your goal reached

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My Supporters

  • Ron & Diane Hextall Cheering for you. All the best. August 2022 $522.50
  • T Jackson Bedford Jr Keep on keeping on! August 2022 $52.25
  • The Giulian Family Jim, the Giulians support you and are keeping you in our prayers. July 2022 $100.00
  • Diane Young July 2022 $100.00
  • Glenn Schoenberger Jim, Kathy and I are with you all the way! May the Lord be with you too! God bless you and Robyn! July 2022 $100.00
  • Daniel & Nadine Solecki & Family Prayers for strength and healing July 2022 $1,000.00
  • Stephen C. Ludlam Post 331 American Legion July 2022 $1,000.00
  • Ron & Diane Hextall Cheering for you. All the best. August 2022 $522.50
  • Helen Levins Hang in there; we will have your back! June 2022 $522.50
  • Heather Shagren Prayers for a cure! July 2022 $500.00

Together, We Explore MPN Research!

The landscape of MPN blood cancers is shifting, with emerging treatments and evolving perceptions that are bringing newfound hope to patients, caregivers, and clinicians. We are dedicated to supporting and uplifting the MPN blood cancer community and to investing in research initiatives globally that will lead to a better quality of life for our community. 

We’ve partnered with “Sole2Soul for MPN” - an innovative collaboration with the CURE Media Group - to empower those who are closely impacted by MPN blood cancers. We’ve created a challenging program for inner adventure while raising funds to fuel change for those who face a debilitating incurable blood cancer.  

Join us today to change the roadmap for MPN research leading to better treatments and cures

About MPN Research Foundation

The MPN Research Foundation has a single goal: to stimulate original research in pursuit of new treatments — and eventually a cure — for polycythemia vera,essential thrombocythemia and myelofibrosis, known collectively as myeloproliferative neoplasms (MPNs).