2024 San Francisco/Sacramento Congenital Heart Walk

Thank you for taking a moment to visit my fundraising page!

In 2019, our son Milo was born with a single-ventricle heart defect, "half-a-heart." Milo had two open heart surgeries in the first year of his life - the Norwood and the Glenn. In January of this year he had a third heart surgery - the Fontan. The Fontan has brought his oxygen saturation from the 70s into the mid-90s. With this he is able to tolerate more physical activity than ever before, with much less shortness of breath. He has grown a lot! He loves learning about sharks and considers himself a "shark expert." He turned 5 recently and is enjoying life!

The Fontan completed the surgical palliation currently available to hearts like Milo's. Although these surgeries have saved and greatly improved his life, they are not a cure. The Fontan circulation has negative side effects down the road including Fontan Associated Liver Disease and heart failure. Eventually, people living with single-ventricle heart disease will need heart transplantation.

We are Team Wonderheart because every day we experience so much wonder at Milo's life and the lives of those fighting alongside him. And, we wonder what the future will hold, both for Milo, for his heart friends, and for the future of CHD research and advancements. We have hope that with funded CHD research, new treatment options will be available to Milo when he needs them.

Will you join us? By supporting Team Wonderheart or joining us in our walk, you're supporting groundbreaking research that will help save and improve the lives of babies born, and children and adults living, with CHDs. Thank you!