Day in the Park 2018 PANS Awareness Walk

Team Gatewood

October 6, 2018 9:30am - 12:00pm

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Our Team

If you are reading this, then you probably know my boys.  They are outgoing, rambunctious, fun loving kids. What you may not know is that they all have PANDAS, an autoimmune disease that was triggered by strep.  Just over a year ago, our lives were turned upside down when my two youngest boys' personalities changed completely. They became aggressive, defiant and regressed very quickly. Sam was a little subtler. He gradually lost executive function and he was unable to read or follow instructions. He began to have panic attacks and he was constantly scared something horrible was about to happen. It was terrifying. I was extremely lucky that to have a friend who is knowledgeable about PANDAS and she was able to help me get them treatment quickly. Three tonsillectomies, several antibiotics, and tons of supplements later we are on the road to healing. While my boys have made such great improvements,  we still have a ways to go for full recovery and we are always scared of relapse. My younger boys need to go the next level in treatment; however, our insurance will not approve this.  SEPPA is working to get legislation through to require insurance companies in Georgia to provide this treatment to my kids.  It happened in Illinois and it can happen here! 

SEPPA is also working to educate providers all over the south east about PANDAS and PANS so that children are quickly diagnosed and treated so that they can go back to being kids.  I am on the board of SEPPA so I can tell you with absolute certainty that 100% of the money you contribute will be used to help kids like mine.  Thank you for your support!  We really appreciate knowing we have so many people standing behind us!

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