We are Matt & Courtney Frist. We are residents of Marshall Township. Ellie is our seven-year-old daughter and she has Smith-Magenis Syndrome (SMS), which occurs in 1 out of 25,000 births. Living with this disorder presents severe challenges with sleep, development and behavior. There are only a few specialists across the globe and there are no viable treatment options.
While there is no treatment or cure, the SMS Research Foundation (SMSRF) is making unprecedented progress toward gene therapy. In partnership with Baylor College of Medicine and the Sanofi Pharmaceutical Company, gene therapy could either replace the most critical gene missing in those with SMS, or improve gene expression to improve quality of life.
We are holding our third annual comedy night to benefit the SMSRF. Our goal is to double our funds raised at our last comedy night to reach $25,000. Please consider registering as a team leader to recruit new guests to our event or to raise money. The more the merrier!!! Plus, be entered in a $500 cash prize drawing. If you can't make it out, would you please consider a donation to support gene therapy?
Thank you for standing up for SMS and for Ellie.
Courtney & Matt Frist