Why We Walk

We are participating in Steps2Cure NF to raise awareness and support for those affected by neurofibromatosis (NF), a genetic disease that causes tumors to form on nerves throughout the body. The money raised will support the mission of NF Northeast, funding patient support programs, advocacy efforts, and research, and will provide hope and help to individuals and families impacted by NF. 

Allegra was diagnosed with this NF1 at 4 months old. She is fortunate, her life is only marginally impacted by NF. She has encured 4 surgeries due to NF, with 3 lasting 5-hours or more. She also has social and school challenges. We hope that her health in the future is good, but with NF 1, there is alwasy the anxiety that comes with uncertainty. 

NF Northeast has provided Allegra and her family with an understanding community. 

Your support is more vital than ever due to major cuts by to medical research by the federal government.

Every step we take brings us closer to better treatments, increased awareness, and a brighter future for all who face NF and allied diseases. Thank you for your support!

$440.90

achieved

Join My Team

My Supporters

  • Ariane Purdy Last month $52.65
  • Marisa LaFalce Last month $105.30
  • Marisa LaFalce Last month $105.30
  • Richard Piliero April 2025
  • Alice Hessinger April 2025 $25.00
  • Marisa LaFalce Last month $105.30
  • Marisa LaFalce Last month $105.30
  • Ariane Purdy Last month $52.65
  • Rami Husseini April 2025 $52.65
  • Alice Hessinger April 2025 $25.00