Why We're Walking

We are participating in Steps2Cure NF to raise awareness and support for those affected by neurofibromatosis (NF), a genetic disorder that causes tumors to form on nerves throughout the body. The money raised will support the mission of NF Northeast, funding patient support programs, advocacy efforts, and cutting edge research, and will provide hope and help to individuals and families impacted by NF. Every step we take brings us closer to better treatments, increased awareness, and a brighter future—thank you for your support!

This team was created in honor of our our incredible little cousin, Jace and his amazing family who stand beside him every day. Jace is bravely living through NF.  His mom-my cousin and best friend, Natalie, is his biggest advocate and loudest cheerleader. She isnt alone in this journey. Jace's dad and sister are also part of the incredible support system that surrounds him with love, strength, and ancouragement every step of the way. Together, they work to raise awareness, support Jace, and make sure he has every opportunity to thrive.  

This walk means to much to all of us.  Its about raising awareness, supporting research, and showing this amazing boy and his family that they are never walking this journey alone.

Thank you for being part of our team and helping us walk with purpose! 

~Ally, Ella, and Logan

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My Supporters

  • Dan Pietrusinski 3 weeks ago $25.00
  • Dan Pietrusinski 3 weeks ago $25.00

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