I am participating in Steps2Cure NF to raise awareness and support for those affected by neurofibromatosis (NF), like our Sammie. NF is a genetic disorder that causes tumors to form on nerves throughout the body. For Sammie, his tumors cover his back, with some near his spine. For the rest of his life, Sammie will work with his medical team to monitor and manage these tumors.
The money raised will support the mission of NF Northeast, funding patient support programs, advocacy efforts, and cutting edge research, and will provide hope and help to individuals and families impacted by NF. Every step I take brings us closer to better treatments, increased awareness, and a brighter future—thank you for your support!