Why We're Walking

Ben’s Brigade is truly grateful for your dedication to raising awareness and advocating for better treatments for Neurofibromatosis. This condition presents itself in many ways, and our commitment to vigilance remains strong.

In February 2025, more than 100 NF advocates from across the country united in Washington, D.C., to push for continued funding. Our mission is unwavering and gaining momentum toward a cure. It was an experience I will never forget.

Your support is invaluable in improving the quality of life for so many—starting with our very own Ben’s Brigade. From the bottom of our hearts, thank you!

Created with Raphaël 2.3.0100%80%60%40%20%0%

$6,047.38

achieved

$5,000.00

goal

of your goal reached

Join Our Team!

Recent Activity

Our Supporters

  • Jerry Bonner 1 week ago $105.30
  • Meg & John Skonier 2 weeks ago $500.00
  • New York Life Insurance Company 2 weeks ago $59.97
  • Patrick Brough 2 weeks ago $65.00
  • Andrew Chupein We’ve got this! 2 weeks ago
  • MARIAN M BONNER Warriors for Ben, With Our Love, Aunt Marian & Uncle John 5 weeks ago $1,000.00
  • Meg & John Skonier 2 weeks ago $500.00
  • Stacy Bowe You’ve got this! Love the Bowe family  3 weeks ago $263.25
  • David Rodgers Last month $200.00
  • Diane Kyle I believe in science, the power of progress, and the resiliency of all patients!!  4 weeks ago $157.95