Most people know how close I hold the Neurofibromatosis / Children’s Tumor Foundation to my heart. Many of you don’t know the reasons why I do...just that NF1 has affected my family. Well....I am that person that is affected by it. While I have a “mild” case which is why many people don’t even think about it; it still has had a major impact on my life. I’ve had surgeries (a few on my eye(s) alone). Most recently I had a Plexiform removed from in between my scalp and skull. Growing up I became accustomed to teasing (due to my eye and speech impairment) and I struggled in school; but I did not let this deter me; I continued on to college and graduated with a BS in Business Management, received my paralegal certificate and the switched gears and received a certificate in Medical Billing. Currently I am preparing to take my exam to receive a license/certification in Medical Coding.
My dream is one day there will be a more treatment and/or a cure. Please join me on May 4 and help me have this dream come true; if you can’t join my team (LeighAnne Strong) you can make a donation; no amount is too small.
I am participating in Steps2Cure NF to raise awareness and support for those affected by neurofibromatosis (NF), a genetic disorder that causes tumors to form on nerves throughout the body. The money raised will support the mission of NF Northeast, funding patient support programs, advocacy efforts, and cutting edge research, and will provide hope and help to individuals and families impacted by NF. Every step I take brings us closer to better treatments, increased awareness, and a brighter future—thank you for your support!