Team Walk4Leah will once again be stepping it out with Steps2Cure NF for our niece, daughter, sister, colleague and human extraordinaire, Leah. And we can't forget her faithful companion, service dog and canine extraordinaire, Dasher. Our aim is to hit our $8,000 target! You can help us get there and here's why it's a wonderful opportunity to consider our quest:
Leah was diagnosed with neurofibromatosis-type 2 related schwannomatosis (NF2) at 7 years old. She met this disorder head on, learning as much as she could while listening to her parents and doctors explain its symptoms, complications, risky surgeries and chemotherapy treatment plans that she was, or would be experiencing. Even at a young age, Leah was determined to live her best life and help others with NF do the same. She has sold bracelets, volunteered at fundraising events, advocated for federal research funding, spread awareness at schools, spoken at medical conferences and run in charity events, all to support her NF community and NF Northeast, the organization that has been by Leah's and her family's side since 2006. NF Northeast, serving nine states including NY, has introduced Leah to expert physicians and researchers, support programs which have improved her everyday life, emerging treatments, and engagement with a caring and dedicated NF community.
We are participating in Steps2Cure NF to raise awareness and support for those affected by neurofibromatosis (NF), a genetic disorder that causes tumors to form on nerves throughout the body. The money raised will support the mission of NF Northeast, and Leah's efforts, in continuing funding for patient support programs, advocacy initiatives, and cutting-edge research, providing answers and hope to individuals and families impacted by NF.
Every step we take and every dollar you donate brings us closer to a brighter future for Leah, and those impacted by NF—thank you for your support!