Vinny lives with NF1 and an optic glioma that affects his vision, a challenge that touches many parts of his daily life. Even so, he continues to move through the world with a spirit that is impossible not to notice. He brings happiness to everyone he meets, and his energy has a way of brightening the people around him, no matter what he’s facing.
His vision struggles don’t stop him from living life to the fullest. Instead, he meets each day with determination, humor, and a resilience that inspires everyone who knows him. His strength reminds us why this cause matters and why coming together as a community makes a difference. Our team is walking to push for better treatments, more understanding, and ultimately—a cure. Every step we take is a promise to Vinny that we’ll keep moving forward with him, and for him.