I am participating in Steps2Cure NF to raise awareness and support for those affected by neurofibromatosis (NF), a genetic disorder that causes tumors to form on nerves throughout the body. The money raised will support the mission of NF Northeast, funding patient support programs, advocacy efforts, and cutting edge research, and will provide hope and help to individuals and families impacted by NF. Every step I take brings us closer to better treatments, increased awareness, and a brighter future—thank you for your support!
JJ is a sweet energetic 7 year old boy who is the center of our world ! JJ recently had surgery to remove a plexiform neurofibroma behind his knee and is our NF WARRIOR!! He is so resilient and takes everything head on. He teaches me every day to live life to the fullest, teaches me how important memories are, not materialistic things, and is the reason I know what unconditional love is. We love him beyond words and are so appreciative of the support from the NF community ❤️ May god continue to bless our sweet boy and watch over him.