We walk for Everly—our Evvy girl. ??
She was diagnosed with Neurofibromatosis Type 1 (NF1) before her first birthday, and not long after, we learned she had developed an optic pathway glioma. Since then, life has looked a little different than we imagined—filled with hospital days, treatment schedules, and learning how to navigate a world we were never prepared for.
But if you know Everly, you know this: she is BOLD.
She’s strong-willed, full of personality, keeps everyone on their toes, and makes sure her presence is known wherever she goes ?
(Small but mighty… emphasis on mighty.)
So we walk for her.
For her strength.
For her future.
For better treatments, more answers, and one day… a cure.
We walk because kids like Everly shouldn’t have to be this brave.
And we walk carrying everything she represents—
Be Bold. Be You. ??
Also, let’s be honest… this is Everly’s Entourage…
so we will be showing up loud, proud, slightly chaotic, and definitely not blending in.
Because this wasn’t the path we chose—
but we’ll walk it together… and we’ll walk it boldly.
Thank you for being part of Everly’s Entourage ??