I am walking in the Step2Cure NF 2025 in Hartford because this cause is very dear to my heart. I inherited NF2 from my dad along with 3 out of 4 siblings. My dad was not diagnosed at the time when my sister had severe back pain as a teenager. They diagnosed it as a tumor at the time we did not know about NF2 in the family.
Years later my dad found out about this genetic disorder from his sister who also had it. My dad eventually lost all his hearing and the 3 of us started to loose ours in our early 20s.
We recently found out my niece (Kayla, on the left in the picture) inherited NF2 from her mom my sister and has both acoustic and spinal tumors.
It is very important to me and my family that a cure will someday soon be available to my niece as well as thousands of other young couples beginning to have families of their own. A cure for future generations so that no other parents will need worry of passing it on to their offspring without a cure available.
I am dedicating joining this walk to my niece Kayla who was recently diagnosed. That she receives the care she deserves as well as her future children if needed by finding a cure soon!!
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