I will be walking on May 4th to support not only one of my greatest joys in the world, but all the people all around the world that live with NF every day of their lives.
For those who do not know, our son Lincoln was diagnosed with NF1 in May of 2024. It's a genetic condition that can cause tumors to form on the body's nervous system. When I was 12, I learned I carried symptoms of this. Never did I imagine that NF would ever come up in my future. NF comes with a lifetime of monitoring and in our case, quarterly doctor visits to see specialists and MRIs.
If you know Lincoln, you know that he is one of the sweetest and kindest young boys, nothing will hold back this blazing fire or positivity.
Please join us, donate if you can, or simply share this page. Awareness may not cure the disease today, but it will help research continue to make the right strides. See you on the 4th.
The money raised will support the mission of NF Northeast, funding patient support programs, advocacy efforts, and cutting edge research, and will provide hope and help to individuals and families impacted by NF. Every step I take brings us closer to better treatments, increased awareness, and a brighter future—thank you for your support!