I am participating in Steps2Cure NF to raise awareness and support for those affected by neurofibromatosis (NF), a genetic disorder that causes tumors to form on nerves throughout the body.
My youngest daughter, Arianna was diagnosed with a spontaneous mutation before she was two years old. Having never heard of NF we did not know what to expect and resources like NF Northeast have been so important as we navigate her path. We are so lucky that Arianna has had relatively mild symptoms and we live in an area with such amazing medical resources. Arianna attends six therapies a week and countless doctors appointments and she rocks every one! We are so happy to participate in this walk and raise money for others navigating the NF world.
The money raised will support the mission of NF Northeast, funding patient support programs, advocacy efforts, and cutting edge research, and will provide hope and help to individuals and families impacted by NF. Every step I take brings us closer to better treatments, increased awareness, and a brighter future—thank you for your support!