We are walking for Everly. She was diagnosed with Neurofibromatosis Type 1 (NF1), a genetic disorder that causes tumors to grow on nerves throughout the body, when she was 11 months old. It can lead to complications with vision, learning, bone development, and more—but the effects are different for everyone, which makes it incredibly unpredictable.
What we do know is that Everly is strong, resilient, and surrounded by so much love.
Everly is our light. Her smile, her strength, and her spirit inspire us every single day. As her family, we walk to show her—and the world—that she is not alone. We walk to raise awareness, to fund critical research, and to bring hope to families like ours who are navigating life with NF.
Our team, Everly’s Entourage, is walking to fight for better treatments, a better future, and ultimately—a cure. Every step we take is a promise to Everly that we’ll never stop fighting for her.