My Personal Fundraising Page

There were only five short weeks from when we first realized something was wrong until my Mom, Kathi Rutkowski's, untimely passing. It all started when a fellow teacher sent Kathi home after she accidentally sat a student with a PB& sandwich next to a student with a peanut allergy. This uncharacteristic mistake in her 25-year career led to a doctor's appointment where she got an MRI that came back with three potential causes Meningitis, Encephalitis or Creutzfeldt-Jakob Disease (CJD).

Within weeks my mom lost her ability to speak. She started having hallucinations. She struggled with walking. She wasn't able to dress herself or take a shower. She stopped using the bathroom and had to wear adult diapers. Eventually she was 100% reliant on the hospice nurses.

She stopped eating and was unable to drink or take her medications. She passed away on April 2, 2014 after slipping into a coma. 

An autopsy confirmed that Kathi had sporadic CJD. CJD is a rare neurodegenerative disease that has no treatment or cure. The incidence of CJD is approximately one and half to two people per million per population per year. In the United States this translates to approximately 550-600 new cases per year.

Please consider donating so one day we can hopefully have treatment and ultimately a cure for CJD! 

Text to Give

To donate to my personal fundraising page, text STRIDES2023 to 50155

About Fundraising

Donations of $250 and above are considered sponsorships.

Sponsorship Levels:

  • Premier: $20,000
  • Diamond: $10,000
  • Platinum: $5,000
  • Gold: $1,000
  • Silver: $500
  • Bronze: $250

Premier, Diamond, and Platinum Sponsors will have their name or logo displayed on participant t-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo displayed on the Strides for CJD website, and will have their name (not their logo) listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.

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How to Register

My Supporters

  • Bethon Environmental Solutions LLC Best of luck on your walk Case! Sorry we can’t be there. -The Bethons October 2023 $318.00
  • Christopher LaMond August 2023 $15.00
  • john schutz August 2023 $53.00
  • Steve/Donna/Nicole/Tara Rutkowski We love you May 2023
  • Bethon Environmental Solutions LLC Best of luck on your walk Case! Sorry we can’t be there. -The Bethons October 2023 $318.00
  • john schutz August 2023 $53.00
  • Christopher LaMond August 2023 $15.00

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My Teammates

About Strides for CJD

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.

Funds raised support our programs including:

  • Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
  • Research grants to help scientists make important discoveries and bring us closer to a cure.
  • Medical education to help raise awareness and understanding of prion disease.