My Personal Fundraising Page
Tim passed on to heaven on 6/3/22 at the age of 54. CJD took him from us way too soon. Tim always had a way to find the good in any situation. He was a problem solver, a “think-outside-the-box” kind of person who never took things too seriously. His legacy is one of integrity, respect, hard work, and dedication to family.
In 2009 Tim was diagnosed with Multiple Sclerosis. He was able to live a good life despite the setbacks MS handed him. He was doing fantastic and was able to work and be involved in the lives of our 3 children.
In March of 2022, Tim started feeling a bit “off”. He first complained of blurry vision and his hearing was muffled. He started to get more agitated and frustrated. In April 2022 Tim was starting to have difficulty walking. He went into the hospital on 4/22/22. We thought it was an MS flare-up. After several MRIs, the doctors determined that his ailments were not an MS flare-up. He was discharged from the hospital on 5/11/22 without a diagnosis. On 5/18/22 the doctor came to our house to deliver the diagnosis of CJD Disease. He lived another 16 days knowing what his fate was.
Like many people, I had never heard of this disease and did some research to find out it affects “one in a million people”. It seems to affect those people in this world who are “one in a million” people. Tim was just that. He was a person of great strength, intellect, and importance….a Titan. That is why we chose to name our team Tim’s Titans.
We are ready to work together with all the other families who have lost their loved ones to help raise awareness for funding research to better understand CJD Disease and maybe provide hope for the future.
Thank you for your support!
Text to Give
To donate to my personal fundraising page, text STRIDES2023 to 50155.
About Fundraising
Donations of $250 and above are considered sponsorships.
Sponsorship Levels:
- Premier: $20,000
- Diamond: $10,000
- Platinum: $5,000
- Gold: $1,000
- Silver: $500
- Bronze: $250
Premier, Diamond, and Platinum Sponsors will have their name or logo displayed on participant t-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo displayed on the Strides for CJD website, and will have their name (not their logo) listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.
$1,530.00
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$1,250.00
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How to Register
My Supporters
- Matina Sterio We are thinking of all of you. The Sterio’s October 2023
- Joseph Civello September 2023 $424.00
- Linda Siegel September 2023
- Patti Decker August 2023 $1,000.00
- Patti Decker August 2023 $1,000.00
- Joseph Civello September 2023 $424.00
My Badges
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Team Fundraising Leader
Awarded when a Team Member raises the most funds for their team
Awarded 08/13/2023
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Fundraising Achieved
Awarded when Anyone reaches 100 % of goal
Awarded 09/25/2023
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Donation Goal Reached!
Awarded when Anyone reaches 100 % of goal
Awarded 09/25/2023
My Teammates
- Patti Decker Team Captain $1,530.00
- Paul Civello $1,324.80
- Jacqueline Decker $666.50
- Terry Decker $533.60
- Peter MF Civello $212.00
- Mary-Jo Klein $100.00
- Skylar Decker
- Sam Leo
- Christopher Decker
- Cheryl Decker
- Ronald Klein Jr $0.00
- Iolanda Cooper
- Ashley Decker
- Jodi DeAugustine
- Peter Civello $0.00
- JoAnn Civello
- Tim Decker
- Barry Gravante
- Rob Geiger
- Jen Geiger
- Ally Geiger
- Lilly Geiger
- Harry Geiger
- Ben Guendel
- Tina Geiger
- John Decker $0.00
About Strides for CJD
Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.
Funds raised support our programs including:
- Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
- Research grants to help scientists make important discoveries and bring us closer to a cure.
- Medical education to help raise awareness and understanding of prion disease.