Our Team Fundraising Page

Barbara Green was the matriarch of the family- our rock, the biggest cheerleader, rockstar volunteer and the best shoulder to lean on. She spent her life going above and beyond for others, and infecting the world with her laughter and wit. In the beginning of 2015 we discovered something was off when she started to lose her memory, couldn't form her sentences correctly and was getting lost when driving. She was diagnosed with CJD and in November 2015 and December of that year we lost her. After her passing it was difficult to find a place to come and take her body for the funeral because the funeral homes "didn't want to catch the disease". People came into our home with hazmat suits because they weren't sure if she was "contagious". The CDJ Foundation helped us find a place to put our matriarch to rest and has been supporting us thoroughout our journey after the fact.  With the help of the CJD Foundation we have found a new family. The support, education and walk are crucial to finding a cure for this disease. Please support our team so the CJD Foundation can continue research, support the families affected by the disease and spread knowledge. We will forever miss our rock, but we will continue to advocate and spread her light so the world can experience a sprinkle of Barbara Green. 

 

Text to Give

To donate to our team, text STRIDES2023 to 50155

About Fundraising

Donations of $250 and above are considered sponsorships.

Sponsorship Levels:

  • Premier: $20,000
  • Diamond: $10,000
  • Platinum: $5,000
  • Gold: $1,000
  • Silver: $500
  • Bronze: $250

Premier, Diamond, and Platinum Sponsors will have their name or logo displayed on participant t-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo displayed on the Strides for CJD website, and will have their name (not their logo) listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.

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Our Team

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Our Supporters

  • Michelle Reynolds October 2023 $53.00
  • Billy Bowman October 2023 $106.00
  • Sherri and Tommy and Fields September 2023 $106.00
  • Karrie White Missing you Mom! September 2023 $530.00
  • Guardian Recovery Network August 2023
  • Alex Fuller August 2023 $1,000.00
  • Perfectly Imperfect Wellness LLC You are truly missed and remain in our hearts always and forever! August 2023 $1,000.00
  • Karrie White Missing you Mom! September 2023 $530.00
  • Anastasia Anderson In loving memory of our beloved mother, Barbara Grunow. We love and miss you more than humanly possible. Praying for a cure. August 2023 $250.00
  • Hannah Friedman August 2023 $150.00

Recent Activity

About Strides for CJD

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.

Funds raised support our programs including:

  • Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
  • Research grants to help scientists make important discoveries and bring us closer to a cure.
  • Medical education to help raise awareness and understanding of prion disease.