Our Team Fundraising Page

My name is Victoria Ellis, and I am participating in Strides for CJD in memory of my mother, Rosanne. My mom was the most fun and loving woman and her life was cut short by a form of prion disease called GSS in 2015 after 8 years of suffering. My family also lost her sister, my Aunt Susan, to this monster of a disease. In 2017 my husband and I brought Strides for CJD to Boston and we have participated ever since. We are proud to raise awareness and funds to beat prion disease and are inspired by the incredible strides that have been made towards a treatment and cure in the last few years. Any and all donations to our team for the CJD Foundation are so appreciated and mean the world to us. Thank you for your support!

Text to Give

To donate to our team, text STRIDES2023 to 50155. 

About Fundraising

Donations of $250 and above are considered sponsorships.

Sponsorship Levels:

  • Premier: $20,000
  • Diamond: $10,000
  • Platinum: $5,000
  • Gold: $1,000
  • Silver: $500
  • Bronze: $250

Premier, Diamond, and Platinum Sponsors will have their name or logo displayed on participant t-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo displayed on the Strides for CJD website, and will have their name (not their logo) listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.

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Our Team

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Team Badges

  • Team : Fundraising Achieved
    Team : Fundraising Achieved

    Awarded when a Team reaches 100 % of goal

    Awarded 09/30/2023

View All Event Badges

Our Supporters

  • Anonymous All our love! With your help and dedication a way will be found! October 2023
  • Lindsay Fiorito October 2023 $53.00
  • Angelica Kucha October 2023 $53.00
  • Kira Coveney October 2023
  • Anonymous October 2023 $950.00
  • Anonymous October 2023 $950.00
  • Nicole Williamson September 2023 $265.00
  • Anthony Costello August 2023 $250.00
  • Facebook Donor August 2023 $100.00
  • Matthew Ellis August 2023 $100.00

Recent Activity

About Strides for CJD

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.

Funds raised support our programs including:

  • Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
  • Research grants to help scientists make important discoveries and bring us closer to a cure.
  • Medical education to help raise awareness and understanding of prion disease.