Gigi aka Barbara Stanilious

Help us to find a cure

Our Mother Wanted Our Family to Help Find a Cure or Treatment

When our mother became ill in Nov. 2014, we went to so many doctors and most of them didn't know what was wrong, in the beginning, and our mother said, "you need to find out what is wrong with me and help others if I should die of this thing".  This illness came out of the blue and destroyed her in 8 weeks, and so that is why we have been involved with the CJD Foundation ever since.  It's something you can't forget, the shock of it all and the way in which most people in the medical field didn't know about how to diagnosis and help.

At that time, we found the CJD Foundation and have since been involved in helping every year, to raise funds, be involved, and we try to keep the spirit of our mother alive with our entire family attending the walks, donating and getting involved where they can.

This year, my sister-in-law, Diane Stanilious and I (Lauren Stanilious) are co-captains of the Morris County NJ Team where the walk event will be held on Oct. 5.

We'd appreciate if you could consider any type of donation in her memory and to help others involved find a cure, help others with the CJD Foundation staff as they helped us find our way through the heartache at that time.

Thank you.

The Stanilious Family

Text to Give

To donate to our team, text STRIDES2024 to 50155

About Fundraising

Donations of $250 and above are considered sponsorships.

Sponsorship Levels:

  • Premier: $20,000
  • Diamond: $10,000
  • Platinum: $5,000
  • Gold: $1,000
  • Silver: $500
  • Bronze: $250

Premier, Diamond, and Platinum Sponsors will have their name or logo displayed on participant t-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo displayed on the Strides for CJD website, and will have their name (not their logo) listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.

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Our Team

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Our Supporters

  • Anonymous Last month
  • Beverly stanilious Gigi’s Guys and Dolls team September 2024 $53.00
  • Karen Fusco September 2024 $10.00
  • Peter Lopez September 2024 $26.50
  • Andrea Custead Go team Stanilious! September 2024 $26.50
  • Lonza USA Inc. August 2024 $1,000.00
  • Johnson & Johnson - Diane & Scott Stanilious July 2024 $200.00
  • lauren stanilious August 2024 $106.00
  • Diane & Scott Stanilious July 2024 $100.00
  • Beverly stanilious Gigi’s Guys and Dolls team September 2024 $53.00

Recent Activity

About Strides for CJD

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.

Funds raised support our programs including:

  • Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
  • Research grants to help scientists make important discoveries and bring us closer to a cure.
  • Medical education to help raise awareness and understanding of prion disease.