Team Diana Marie Hunter

Diana was taken away from us at the age of 29. Though there was much left for her to accomplish, her accomplishments to this point were impressive. Born at the Fort Belvior Hospital in 1987, Diana spent her early years at Army posts, attending Department of Defense Schools. Her early years were at Fort Bliss, Texas and the Naval War College, at New Port, Rhode Island. From there she spent her formative years in Europe, splitting time between the Netherlands and Germany. During that time she became an accomplished musician (Clarinet), gained a working knowledge of the German Language, and was an ardent horse rider. Upon her return to the United States, where she attended and graduated from High School, she gained numerous honors in music, achieving Honors Band in Fairfax County Virginia and being the concert Mistress for their concert and winning the schools music scholarship. She attended Virginia Tech, graduating in 2011 and pursued a career in the corporate world, where she was quite successful being awarded numerous promotions, bonuses and other honors. It should be added that she became an accomplished baker and cake decorator, having produced some memorable cakes.

At the height of her career and three years prior to her death changes began in her life. There were cognitive changes in her work. There were car accidents. Minor errors at work, began to get worse. Concussion like symptoms began to appear. Some of her symptoms even mimicked Alzheimers’s or Dementia. Eventually she was forced to resign and move in with her parents who became willing caretakers.

Diana received the finest medical care available. There were numerous examinations and tests from numerous specialists. There were treatments and therapy, but she continued to decline. There were more examinations and theories, but her decline continued. Her motor skills declined and eventually she was robbed of independent mobility. She became completely dependent on her parents for everything to include bathing and feeding. Diagnosis’ ranged from severe concussion to traumatic brain disease. Her decline continued. Finally, she was admitted to Johns Hopkins Hospital where she was diagnosed with CJD within 3 days. We were told at this point that she had less than 30 days to live. Death occurred within the next two weeks.

As we reviewed our actions in trying to find a cure for Diana, we left no stone unturned. We went to every specialist, took every test, and tried every recommended treatment. Nothing worked. For our family, getting involved with Strides for CJD was an obvious and necessary way to honor our daughter and to contribute to the research aimed at treating/eliminating this 100% fatal disease. We don’t want other families to lose their love ones to this disease which has not received the attention that it deserves despite its relative rarity.

Text to Give

To donate to our team, text STRIDES2024 to 50155

About Fundraising

Donations of $250 and above are considered sponsorships.

Sponsorship Levels:

  • Premier: $20,000
  • Diamond: $10,000
  • Platinum: $5,000
  • Gold: $1,000
  • Silver: $500
  • Bronze: $250

Premier, Diamond, and Platinum Sponsors will have their name or logo displayed on participant t-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo displayed on the Strides for CJD website, and will have their name (not their logo) listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.

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Our Team

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Our Supporters

  • Martina Huamonte 4 weeks ago $50.00
  • Ihar Pahrabitski Last month $200.00
  • Thelma Jacobs Last month
  • Rishi Edupalli Last month $20.00
  • Carol Wilkerson Last month
  • EA Roofing & Siding LLC EA Roofing & Siding LLC July 2024 $1,000.00
  • Byron Jones August 2024 $530.00
  • Vickie and Clarence Hunter Diana you are never forgotten and you are always loved July 2024 $530.00
  • Bruce Anderson We miss you Diana! August 2024 $300.00
  • Michael Everett August 2024 $265.00

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About Strides for CJD

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.

Funds raised support our programs including:

  • Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
  • Research grants to help scientists make important discoveries and bring us closer to a cure.
  • Medical education to help raise awareness and understanding of prion disease.