Our Team Fundraising Page

Tim passed on to heaven on 6/3/22 at the age of 54. CJD took him from us way too soon.  Tim always had a way to find the good in any situation.  He was a problem solver, a “think-outside-the-box” kind of person who never took things too seriously.  His legacy is one of integrity, respect, hard work, and dedication to family.

In 2009 Tim was diagnosed with Multiple Sclerosis.  He was able to live a good life despite the setbacks MS handed him.  He was doing fantastic and was able to work and be involved in the lives of our 3 children. 

In March of 2022, Tim started feeling a bit “off”.  He first complained of blurry vision and his hearing was muffled.  He started to get more agitated and frustrated.  In April 2022 Tim was starting to have difficulty walking.  He went into the hospital on 4/22/22.  We thought it was an MS flare-up.  After several MRIs, the doctors determined that his ailments were not an MS flare-up.  He was discharged from the hospital on 5/11/22 without a diagnosis.  On 5/18/22 the doctor came to our house to deliver the diagnosis of CJD Disease. He lived another 16 days knowing what his fate was.

Like many people, I had never heard of this disease and did some research to find out it affects “one in a million people”.  It seems to affect those people in this world who are “one in a million” people.  Tim was just that.  He was a person of great strength, intellect, and importance….a Titan.  That is why we chose to name our team Tim’s Titans. 

We are ready to work together with all the other families who have lost their loved ones to help raise awareness for funding research to better understand CJD Disease and maybe provide hope for the future.

Thank you for your support.

Text to Give

To donate to our team, text STRIDES2024 to 50155

About Fundraising

Donations of $250 and above are considered sponsorships.

Sponsorship Levels:

  • Premier: $20,000
  • Diamond: $10,000
  • Platinum: $5,000
  • Gold: $1,000
  • Silver: $500
  • Bronze: $250

Premier, Diamond, and Platinum Sponsors will have their name or logo displayed on participant t-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo displayed on the Strides for CJD website, and will have their name (not their logo) listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.

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Our Team

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Our Supporters

  • Mary Anne Klamm Last month $26.50
  • Sandeep George Last month $106.00
  • marissa oleary Last month $106.00
  • Anonymous ❤️ Last month
  • Jacqueline Decker Last month $300.00
  • Ashley Decker I miss you everyday! Last month $1,000.00
  • Patti Decker July 2024 $1,000.00
  • Paul Civello September 2024 $530.00
  • Jacqueline Decker Last month $300.00
  • Joseph and Amanda Civello - Haushalter September 2024 $265.00

Recent Activity

About Strides for CJD

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.

Funds raised support our programs including:

  • Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
  • Research grants to help scientists make important discoveries and bring us closer to a cure.
  • Medical education to help raise awareness and understanding of prion disease.