Striding for Diane Team Fundraising Page

My name is Tom Siko.  I was married to Diane for 31 years before she succumbed to this very rare and devasting Creutzfeldt-Jacob Disease.

The reason me, my son Tom, my daughter Taryn and Diane’s brother Ron are fundraising for the CJD Foundation is we want to help provide the much-needed financial support for the foundation.

About Creutzfeldt-Jakob Disease

As stated on the Creutzfeldt-Jakob Disease (CJD) website it is a rare, rapidly progressive neurodegenerative disease.  It is one of several prion diseases caused by prion proteins that misfold in the brain.  There is no treatment or cure and the disease is invariably fatal.

Mission

The mission of the Creutzfeldt-Jakob Disease Foundation is to

  • support families affected by prion disease
  • raise awareness
  • support medical education and research

The foundation carries out this mission through:

  • Family support including a 7-day a week Help Line, referrals, support groups, and teleconference speaker series
  • Education and information for families, caregivers, medical professionals, and funeral professionals
  • Advocacy with political representatives and public policy makers
  • Annual Family Conference that brings together affected families and prion disease experts
  • Family Workshops held around the country
  • Collaboration with scientists, clinicians, medical centers, health authorities, professional organizations, and international patient associations
  • Communication of current research and Foundation activities via newsletter, social media, emails, and family teleconferences
  • Research grant program, with international awardees selected by our Scientific Advisory Committee

Text to Give

To donate to our team, text STRIDES2024 to 50155. 

About Fundraising

Donations of $250 and above are considered sponsorships.

Sponsorship Levels:

  • Premier: $20,000
  • Diamond: $10,000
  • Platinum: $5,000
  • Gold: $1,000
  • Silver: $500
  • Bronze: $250

Premier, Diamond, and Platinum Sponsors will have their name or logo displayed on participant t-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo displayed on the Strides for CJD website, and will have their name (not their logo) listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.

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Our Team

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Team Badges

  • Team : Fundraising Achieved
    Team : Fundraising Achieved

    Awarded when a Team reaches 100 % of goal

    Awarded 09/28/2024

View All Event Badges

Our Supporters

  • Steph Musurlian 3 weeks ago $50.00
  • Lisa Lindenman 3 weeks ago $26.50
  • Ron Pighini 4 weeks ago $1,000.00
  • Nancy Zimmermann 5 weeks ago $53.00
  • Mark Krause 5 weeks ago $100.00
  • Ron Pighini 4 weeks ago $1,000.00
  • Tom Siko Last month $107.80
  • Mike Saltzman Last month $106.00
  • Mark Krause 5 weeks ago $100.00
  • Taryn Zimmermann Last month $100.00

Recent Activity

About Strides for CJD

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.

Funds raised support our programs including:

  • Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
  • Research grants to help scientists make important discoveries and bring us closer to a cure.
  • Medical education to help raise awareness and understanding of prion disease.