My Personal Fundraising Page
CJD has devastated my family — we’ve lost my cousin Frankie, my grandfather Sibby, and most recently, my mother. It’s a brutal disease that takes your loved ones within weeks. My mother was full of life, always making us laugh and lighting up whenever she talked about her grandson Dylan or her new great-niece Nora. Just a month after her diagnosis, she was gone. We desperately need more funding for research to better understand this disease and one day find a cure — no family should have to go through this. This is the reason why I’m walking — to help raise funds, spread awareness, and fight for a future without CJD.
About Fundraising
Donations of $250 and above are considered sponsorships.
Sponsorship Levels:
- Premier: $20,000
- Diamond: $10,000
- Platinum: $5,000
- Gold: $1,000
- Silver: $500
- Bronze: $250
Premier, Diamond, and Platinum Sponsors will have their name or logo displayed on participant t-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo displayed on the Strides for CJD website, and will have their name (not their logo) listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.
Please note, sponsorships/donations do not include registration; rather, sponsorships/donations and registration are separate transactions. To register*, please click here.
*Registration fees do not count toward the sponsorship and team fundraising deadline or the fundraising competition. They will not appear on the team or individual fundraising thermometers.
How to Register
My Supporters
- Deborah Toomey Go Renee! In memory of my best friend,Janis, and her dad Sibby!❤️ September 2025 $106.00
- Sandra Santosuosso Sending lots of love and hope for a cure September 2025 $106.00
- Renee Merchant August 2025 $50.00
- Deborah Toomey Go Renee! In memory of my best friend,Janis, and her dad Sibby!❤️ September 2025 $106.00
- Sandra Santosuosso Sending lots of love and hope for a cure September 2025 $106.00
- Renee Merchant August 2025 $50.00
My Badges
View All Event BadgesMy Teammates
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Doreen Carbone $4,309.00
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Denise Chainey Team Captain $1,262.60
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Kathy Girolamo $518.00
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Renee Merchant $262.00
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Nancy Dasaro $256.00
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DONNA CARBONE $175.00
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Diane Bruno $50.00
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Mary Carbone $40.00
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Isabel Doherty
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Julie Ahern $0.00
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Eva Girolamo
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Nicole Pagliarulo
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Michael Piccardi
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Anna Piccardi
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Deedra Magee
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Joseph Girolamo
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Kathie Chainey
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Emma Girolamo
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Kathleen Drake
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Lisa Jones
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John Ciampa $0.00
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Victor Bruno $0.00
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Elaine Quartarone
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Gloria Johnson
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Joseph Johnson
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Wayne Chainey $0.00
About Strides for CJD
Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.
Funds raised support our programs including:
- Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
- Research grants to help scientists make important discoveries and bring us closer to a cure.
- Medical education to help raise awareness and understanding of prion disease.